Prolia shots

Posted by ann78 @ann78, Jun 16 6:30am

Has anyone had experience with prolio shots?

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Profile picture for nycmusic @nycmusic

Question—if one is concerned about Prolia shots 2x per year, could smaller doses be done 4x a year and still be effective ? Concern about side-effects… also concern about the fact you only take it 2 years and then must take another med or lose all the benefits- this bothers me and my desire to avoid meds for life, so many of which are very hard on older body systems which are already challenged.

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@nycmusic Amen!

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Profile picture for blm1007blm1007 @blm1007blm1007

Although we are all different I will tell you of my decision and story.
I tried Foxamax and Actonel in the past and each time my back muscles went out and in horrible pain.
These medications are all suppose to help with osteoporosis early on.

Took for Forteo injections and it took my vitamin D down and I went into horrible arm pain until I myself figured out that my Vitamin D was being affected. Forteo was depleting my Vitamin D. Went to several doctors to understand what had happened and all said "Nothing wrong, no findings." It was I that figured it out after research, talking to others, and making a decision to replenish my Vitamin D.

Last year it was suggested that I go on Evenity. My bone density came back a -4.
I have decided not to take it due to possible side effects and then because of what med's you have to take afterwards long term.

For the last two years due to another health problem I began doing light exercises. Since then my tailbone that was painful when sitting on it no longer is painful no matter how I sit.
In the last decade I have taken 3 falls and not broke a bone.

As we have been told all along, exercise, exercise. Maybe if I had listened and done that through the years I would not have had a -4 bone density test...don't know.
For me, too many medications turn out to be causing other problems while they are supposedly fixing another.
We have to take the time to research, think deeply and make a decision for ourselves knowing ourselves better than anyone else and what risks we want to take. Those risks flare up in many things in life and decisions are always having to be made.
Barbara

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@blm1007blm1007 What a great post! And i agree 100%. Sometimes these tretments can cause too many other problems. So take your pick, i guess.

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In reply to @rosemariewalters "@nycmusic Amen!" + (show)
Profile picture for rosemariewalters @rosemariewalters

@rosemariewalters I have noticed that chemo docs reduce doses, divide them differently, or stretch them out into longer infusions….they sometimes give IV hydration the day after chemo to help the body clear toxins…pre-meds for anticipated side effects….wouldn’t it be great if docs could test bone patients to see if particular meds would work before giving out meds ! But, i don’t know if any of this applies to other meds like bone meds.

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Profile picture for nycmusic @nycmusic

@rosemariewalters I have noticed that chemo docs reduce doses, divide them differently, or stretch them out into longer infusions….they sometimes give IV hydration the day after chemo to help the body clear toxins…pre-meds for anticipated side effects….wouldn’t it be great if docs could test bone patients to see if particular meds would work before giving out meds ! But, i don’t know if any of this applies to other meds like bone meds.

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@nycmusic

I have spoken with my endocrinologist about the possibility of stopping Prolia and having reclast infusions. He agreed to having me take one half dose and monitoring for osteoclast activity to see if half is effective enough. Still weighing the possibility.

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Profile picture for nycmusic @nycmusic

@rosemariewalters I have noticed that chemo docs reduce doses, divide them differently, or stretch them out into longer infusions….they sometimes give IV hydration the day after chemo to help the body clear toxins…pre-meds for anticipated side effects….wouldn’t it be great if docs could test bone patients to see if particular meds would work before giving out meds ! But, i don’t know if any of this applies to other meds like bone meds.

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@nycmusic Yes, it sure would be great if docs could test bone patients to see if a particular med worked. Interesting about chemo docs. You have intersting and informative posts. Thank you.

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Profile picture for rosemariewalters @rosemariewalters

@nycmusic Yes, it sure would be great if docs could test bone patients to see if a particular med worked. Interesting about chemo docs. You have intersting and informative posts. Thank you.

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@rosemariewalters

I agree! My endo has agreed to do bone marker testing to monitor if I decide to do this.

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Profile picture for gravity3 @gravity3

@rosemariewalters

I agree! My endo has agreed to do bone marker testing to monitor if I decide to do this.

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@gravity3 I like it when docs work with patients in this way- shows they are paying attention to us .

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Profile picture for rosemariewalters @rosemariewalters

@nycmusic Yes, it sure would be great if docs could test bone patients to see if a particular med worked. Interesting about chemo docs. You have intersting and informative posts. Thank you.

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@rosemariewalters hi—well, I have some experiences with different kinds of cancer—myself, my late husband and other family and friends…the constant monitoring, even when NED, raises our medical consciousness..and i try pass the info on so we all can form intelligent questions for our docs. The internet is flooded with info and this site helps sort it out—but, in the end, it’s good docs who can really interpret that in a cohesive actionable way.

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Profile picture for nycmusic @nycmusic

@rosemariewalters hi—well, I have some experiences with different kinds of cancer—myself, my late husband and other family and friends…the constant monitoring, even when NED, raises our medical consciousness..and i try pass the info on so we all can form intelligent questions for our docs. The internet is flooded with info and this site helps sort it out—but, in the end, it’s good docs who can really interpret that in a cohesive actionable way.

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@nycmusic I had my first Prolia shot this past February. Next one is in August. My medical team of oncology, cardiology, primary, and nephrology all consulted together to determine the best medication and dosage to use. My entire team [don't forget that we as patients are also part of that team!] works hard to keep good communication going. We owe it to ourselves to surround ourselves with the best people we can!
Ginger

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Being a proactive patient is very important… we really must see ourselves as team members ! Saw my Primary today, an excellent doc for many years and she said some people have different healthy ranges for test result #s, and I’m in a good place for now, no extra tests/meds needed …I get blood tests every 3 months from oncologists—all the docs look at overall trends…I’ve been basically healthy other than CRC, now NED 18 months…docs hesitate to mess too much with good health ! I don’t need the super--restricted diet presently…mostly just being aware, careful. balanced…and I am disciplined…my doc has shown when action is needed she’s very on top. We’re a team !

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