Hi John,

Thank you for the concerning note. I'm still here! We had to have a new roof put on our old house and my husband was doing the work to. Then I had to sure everyone had food, drinks, etc. I'm going to have to take a week to recuperate! But III m feeling more tired, more pain (prob fibro too) and also trying to coordinate Dr visits etc and I haven't had a chance to set up the FB questions I know they want me to answer in that group you directed me to. So they probably deleted me by now!
I do have a newer symptom. I am itchy on my skin on my arms, back, chest, in my ears, my scalp and the bottom of my feet (randomly too). And when it's worse it's so irritating because I am itchy and theres nothing that I can do. I did try hot shower and I use Aveeno body wash, but it makes me feel better but does not get rid of it. Any idea about this? It very well can be a symptom from the FGFR3 ANTIBODY TOO.
Darlia C