Hi John,

Thank you for the concerning note. I'm still here! We had to have a new roof put on our old house and my husband was doing the work to. Then I had to sure everyone had food, drinks, etc. I'm going to have to take a week to recuperate! But III m feeling more tired, more pain (prob fibro too) and also trying to coordinate Dr visits etc and I haven't had a chance to set up the FB questions I know they want me to answer in that group you directed me to. So they probably deleted me by now!
I do have a newer symptom. I am itchy on my skin on my arms, back, chest, in my ears, my scalp and the bottom of my feet (randomly too). And when it's worse it's so irritating because I am itchy and theres nothing that I can do. I did try hot shower and I use Aveeno body wash, but it makes me feel better but does not get rid of it. Any idea about this? It very well can be a symptom from the FGFR3 ANTIBODY TOO.
Darlia C

Hi Darlia (@darlia),

Thanks for the update. Sounds like you have been busy and sometimes that can be a really good thing. I have had itchy skin that comes and goes with my neuropathy but it hasn't been too bad. Others that I have talked to shared similar symptoms with their neuropathy. Some people have found relief using magnesium lotion. I've used this on my legs and it helps keep the skin moist which I think helps. Others have found relief with an epsom salts lotion or bath. I have not tried this. Hopefully some other Connect members can share what has worked for them.

John