← Return to Relief from Radiation Fibrosis Syndrome

Discussion
stephenrfleury avatar

Relief from Radiation Fibrosis Syndrome

Head & Neck Cancer | Last Active: 3 hours ago | Replies (83)

Comment receiving replies
Profile picture for harleytiger @harleytiger

Hello Stephen, I too suffer from neck fibrosis from radiation and I was going to physical therapy for hard deep massage a long time and it helped a lot. I couldn't keep going so I bought a SKG H7 Cordless Neck Massager on Amazon for $100. And I also bought a Plantifique Gua Sha facial massage which I use with Hawk Grips massage lotion. I use them once a day or every other day. I also do a lot of neck stretching. It's a little investment, but I think they all help a lot. It's painful at times, but the neck feels much better in the morning. Lastly, I also go to Acupuncture. Along with the Acupuncture, my doctor gives my trigger point shots in the neck hard areas. I haven't tried Botox, but I'm going to ask my doctor on my next visit.

Jump to this post


Replies to "Hello Stephen, I too suffer from neck fibrosis from radiation and I was going to physical..."

@harleytiger had radiation & chemo nasopharyngeal treatment in 2006 - and in mid 2020 diagnosed with late effects of radiation - severe neck fibrosis, dysphagia - swallowing, dysarthria - speech, numbness in lowere jaw and lip, and drooling - all stems from late effects.
Just like you - have been doing exercises to neck, and mouth stretching, going for myofascial once every 2 weeks, and lately got a red light therapy device to assist - in the hope that I going forward I will not have the need for a feeding tube to assist in nutrition!!
I have brought this Botox injection to my oncologist a year ago - but, have not have any referral from him.
Good luck with your Botox !

@harleytiger

I get Botox injections every 90 days and had had fat grafting surgery at Mayo. The combination has almost eliminated the pain and greatly increased my neck's flexibility.