I’m sorry you had this experience, I know first hand how frightening it is, since my husband had multiple bouts of sepsis as he awaited a liver transplant needed because of secondary cholangitis. He was transplanted at Mayo Jax, so I’m familiar with their procedures. We also spent a year waiting first in MA so this advice pertains to any ER. Now that you’ve had that experience here are my list of things to consider doing.
Get your doctors to have a sepsis flag added to his records. That will immediately pop up when you hit the ER and expedite triage. Sepsis symptoms can sometimes be subtle, you’ll recognize them because you know your husband’s symptoms well, but aren’t always obvious to a busy ER. Having that flag expedites testing.
Call your on-call primary team before heading to the ER to let them know you’re coming. They will send a member of the liver team down to the ER at some point.
Bring a list of his medications and the most recent antibiotics he was treated with and duration of treatment. If he starts to develop antibiotic resistance, make sure you have that list as well.
Take a test drive to the emergency entrance when you’re calm so you know how to get there.
All the other advice previously listed by others is also great and I would follow it. There may be a day when you need to send him by ambulance so keeping a short summary of underlying medical condition and medications to give to the EMTs is helpful.
Wishing you all the best.
Lynne
@lynnecp Thank you!! It sounds like we need to talk! I have so so so many questions, and I’m trying not to freak myself out so I don’t freak out my husband. We are back in Jax for hopefully the last step before being listed, and my husband will have the exploratory laparoscopy tomorrow sometime. I have so many questions and I hate to bother everyone with them all…