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Looking for Direction on how to make the right treatment choices
Bladder Cancer | Last Active: Jul 12 9:34am | Replies (32)Comment receiving replies
@jr1466
Thank you, jr. I have read about this. And I want to ask, but I don't want to anger the doc (questioning his expertise/honesty) or the techs.
It's a balancing act and I don't want to change harming my husband in any way.
Let me ask, how painful was this process at Mayo. Others who have gone to well-reputed centers like Hopkins, Mayo, Cleveland Clinic, etc., have said it was not at all painful and they didn't suffer much after.
My husband had uncomf side effects for only a few hrs after his cysto. After TURBT, the usual burning and horrible feeling of constant urgency but no output. But that only lasted a few hours as well.
He starts therapy in a little over a week. I feel like we should have gone for that 2nd opinion at Hopkins or GWU. Both an hour from us. I contacted Hopkins but no response.
Thanks in advance.
My very BEST to you for continued health and hopefully NED!!!!!!
Replies to "@jr1466 Thank you, jr. I have read about this. And I want to ask, but I..."
@glinda47 It was never painful. Uncomfortable and some burning, especially in the hours immediately following release of the BCG. And some fatigue throughout the week.
My assessment was last week and my cytology indicated no cancer cells detected. So I have had a positive response…just took some persistence. I start maintenance in a couple weeks.
I’d do it all again in a heartbeat and have nothing but good things to say about my care at Mayo.
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@glinda47
I would go directly to the number for Dr. Patel or Dr Katz at Hopkins if you decide to go there or Dorothy Davis(wonderful) who is the coordinator for the program. I called her to get my husband in the program at JHH. I don’t have my phone at my side at this moment but if you have trouble finding the numbers on the JHH site let me know.