@shookercooker , I just happened upon this group. I was diagnosed with AAPO AIV amyloidosis in 2021 through biopsy after having a partial nephrectomy on left kidney due to renal cell carcinoma. I knew something wasn’t quite right after surgery, however, was shocked and scared to get this diagnosis . It affects my kidneys, duodenum, and nervous system. My heart hasn’t been affected, although I have cardiac issues. The frustrating part of this disease is that I don’t know any more about it today than I did 5 years ago! There is little to no information on this particular for of amyloidosis.