Dealing with emotional and physical side effects of prostate cancer

Posted by bkind2bj @bkind2bj, Jun 18 7:51am

My husband cancer spread and emotionally he’s struggling with it and the nausea and cell counts along with pain. Every time he calls the doctor, they never get back to him. His counts are low and they want to still treat him. I need to get help. I need to know why he’s not getting answer or calls back.

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I don't know where you live: city and state, and how far you may live from a city with a university-based, teaching medical center that has a well-respected prostate cancer team, but...please find one. You deserve timely responses to your calls and questions. Your husband's physician has breached his ethical duty to communicate with you in a complete and timely manner. (S)he no longer deserves your husband as a patient. Find that university-based , teaching medical center and establish a relationship that you and your husband are deserving of. Good luck to you and your husband.

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Profile picture for jimgaudette @jimgaudette

@jimgaudette ADT also caused ED, but for me no loss of libido. I fixed my ED with an inflatable penile implant (which my wife and I are very happy with) but may not be the best choice for everyone.

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@jimgaudette Jim , I’m on the fence regarding getting an implant , the reason is the few times I’ve been able to get a weak erection I can’t feel anything, no sensation at all this no chance for an orgasm. My Dr agrees that even with an implant it’s a gamble to think that my nerves will improve despite 2 yrs post surgery. I’d like to know anyone else had no feelings then after implant sensations came back , good luck sounds like you’re happy with your decision my decision is difficult.

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I have ED (due to partial nerve-sparing RALP), but my libido is intact and while it’s difficult with a soft penis, I’m able to reach climax, so I must have enough working nerves for that. I still have that sensitivity.

It’s been just six months since surgery for me, so I’m early days yet, but I do read all the implant posts, because that’s a definite possibility for me at some point.

The thing with me, though, is that I’d go the implant route even if I had no sensation left, because I’d see it as something for my wife. I’d never see an implant as something just for me, though in a roundabout way, I guess it would still be for me in that I’d take some pleasure in being able to provide pleasure, if that makes any sense. I’ve never viewed sex as “Oh, I get to have an orgasm, yippee!” but instead as “Oh, I get to give an orgasm (hopefully!).”

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Profile picture for graybeard46 @graybeard46

@jimgaudette Jim , I’m on the fence regarding getting an implant , the reason is the few times I’ve been able to get a weak erection I can’t feel anything, no sensation at all this no chance for an orgasm. My Dr agrees that even with an implant it’s a gamble to think that my nerves will improve despite 2 yrs post surgery. I’d like to know anyone else had no feelings then after implant sensations came back , good luck sounds like you’re happy with your decision my decision is difficult.

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@graybeard46 After surgery, I was able to get an erection. That went away when I was put on ADT. My wife and I had what we called “lesbian sex” for three years. Since the IPP implant, we are able to have sex the “old fashioned” way and it has worked out well. An IPP will make penetration possible, but will not make sensation or orgasm any better. From what you’ve said, I would suggest trying to get things working with masterbation before getting an IPP. It is a major surgery with a six week recovery period. For me, it was worth it, but without being able to have an orgasm most of the time, I think it would probably be an unnecessary surgery leading to a lot of pain and frustration.

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