Bowel challenges post radiation

Posted by anything4him @anything4him, 1 day ago

Hi everyone! It’s been a bit since I’ve been on here for my hubby. Hope everyone is staying positive & healthy.

Recap: Diagnosed 2024 PSA 6.67
Gleason 7, Tertiary pattern 5, ESE PT3a, Cribriform Glands: Present, lymph node positive. Decipher score .96 Highly aggressive
RP Dec 2024, PSA detected again 7 months later so did 38 sessions EBRT last year & on Abireterone, Orgovyx, Prednisone & a few other side meds.
PSA holding at undetectable (yay!)

He is having so many bowel movements that it is impacting his day. (5-7 times a day) I’m guessing it’s radiation related. Oncology has sent him back to GI & have upcoming appointment next week. Pretty much a constant feeling he has to use the bathroom , and immediately after eating has the urge. Radiation was 7 months ago & had no issues during radiation.

Has anyone else experienced this post radiation?
If so, could you kindly share any suggestions, or questions we should be asking at the next appointment?

As always, thanks guys for your advice & support. Wishing you all well!

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@brianjarvis
Thanks! Have a telemed with the GI on Tuesday so guess we will see what tests are next and hopefully get a solid diagnosis with a treatment plan afterwards. His prostate was removed prior to radiation so I’m sure he took a pretty serious hit. The full bladder, empty bowel during radiation was no problem. This situation is new - started 7 months after radiation but I’ve read that can happen, sadly. I’ll post back as this unfolds so others can hopefully benefit from what we learn.

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@anything4him My fault for missing the “RP Dec 2024” in your original post. Much about radiation treatments is different when comparing primary radiation to salvage radiation,

The questions still are about how much radiation hit his intestines and/or rectum during treatment, how much damage did they do, and what can be done to treat that damage. (It’s been months now; he shouldn’t have to just deal with it.). You may have to push them a little on this one.

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