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Colleen Young, Connect Director avatar

Living with Parkinson's Disease - Meet others & come say hi

Parkinson's Disease | Last Active: Jul 19 6:55am | Replies (1004)
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Profile picture for timber2026 @timber2026

@hopeful33250 He was diagnosed 4 years ago. Now they are telling me he also has Dementia with Lewy Bodies. I am his 24/7 caregiver. Definitely a hard road but I have resigned myself to the fact that this is OUR life now. We have been married 52 years and I will keep me with him until I can't. ❤️

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Replies to "@hopeful33250 He was diagnosed 4 years ago. Now they are telling me he also has Dementia..."
Teresa, Volunteer Mentor | @hopeful33250 | Jul 5 6:40pm

Hello @timber2026

I admire your desire to keep him with you for as long as you can. There are some other discussion groups on Connect that you might find helpful. Here are the links:
--Communicating Challenges with Lewy Body Dementia
https://connect.mayoclinic.org/discussion/communicating-challenges-with-lewy/
--Caregivers: Lewy Body and Emotional Effects
https://connect.mayoclinic.org/discussion/lewy-body-dementia-1/
Do you have a support system of family and/or friends available to help you? This is a situation where you will need others.

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