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Advanced NETs-When treatment is no longer possible.
It is often said by oncologists that NETs is slow going and it usually is slow going.. Sometimes, I have heard that "You will die with NETs not by NETs" I have not read or heard discussed that sometimes treatment is no longer possible or viable for the patient. I found this
video to be helpful.
It can be an awkward situation to be at the acceptance stage with or without a distinct timeline and feel as if the end stage is awkward in NET groups and with individuals.. Just wondering about other's take on this situation.
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Hello! I met my soul mate 6 years ago. We found out about 6 months into our relationship that he had Carcinoid tumors and probably had for years. Numerous Dr visits and hospitalizations, plus 2 surgeries. He was waiting to get a second valve replacement but was told he wouldn’t survive another operation, which was true. Sadly he went to palliative care thinking he would be coming home after IV diretics to remove the fluid. He passed away after being there a month. That was January. It’s now June and I’m still crying everytime I mention his name. Daily! Just had to vent.
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7 ReactionsThis is a great informative video. I attended all his appointments, so I knew what we in for, but this is so much more detailed!! Thank you for posting this. I sure wish I had seen this years ago! ❤️
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3 ReactionsBluebird and Nevinrbaskin
Thank you for responding. I was hesitant to post this information, understanding that it is generally true that people live with Nets rather than dying from it... However the acceptance stage is often reached and sustained when shared. And the information can sometimes be freeing..
@bluebird1953
Bluebird, Rather than venting you are sharing your love for the person you loved as your priority, especially when he was so sick. Naturally his name and memory brings tears of missing and memories, of gratitude and grief. How beautiful is your love...May you feel that love sustaining you in your grief with your soul-mating connecting somehow still.
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2 ReactionsThanks for sharing this.