@beaquilter so sorry about your husband. I wish I had some good news for you. I completely understand your sadness and frustration. The not knowing is what hurts me the most. My husband says I am a control person. I feel like if I knew what I was dealing with I could handle it better. One thing I can tell you is if your husband can keep a positive attitude it does make a difference. We have had 4 good years since he was diagnosed. Thoughts and prayers for you.