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NF1 and nerve pain from hell post-fibroma surgery. Ideas?
Spine Health | Last Active: 11 hours ago | Replies (46)Comment receiving replies
@ccchang Not really sure, I am hopeful and mainly guessing. I have done TONS of research on this and it is 'possible' for nervers to regrow after a surgeries like we have had. While my leg is numb, with loss of sensation, my foot is constantly in pain, with all these jolts. If i am feeling pain, then there must be nerves going to it, possibly regrowing or rerouting itself. Key word being 'hopefully'. Next mont makes one year since my surgery. Time will tell I guess. Good luck to both of us.
Replies to "@ccchang Not really sure, I am hopeful and mainly guessing. I have done TONS of research..."
@insanepain Ok, thank you. I am same as you - numb leg and foot and pain (especially at night during sleep). FYI, I am taking supplements - Alpha Lipoic Acid, B-Complex and Magnesium Glycimate, as I read on this forum that those are good for nerves. I also sometimes soak my feet in warm water w/ magnesium flakes (which I think is similar to Epsom salt). When the pain is really bad at night, I get up and take a Tylenol. Otherwise, i try to just bear it. I hope your/our nerves regrow!
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@insanepain I’m having spinel decompression L1-L-5 in 4 weeks. Pain is horrible in the lower back and front hips down. If you’ve had the surgery was ineffective? Anything you’re doing to help prevent incontinence? I’m going every 2 hours to help prevent it. Thanks. Jan D from Texas.