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Anyone else find the side effects of Hydrea 500MG frightening?
Blood Cancers & Disorders | Last Active: 1 hour ago | Replies (194)Comment receiving replies
It's natural to worry and dwell on the worst possible outcomes.
Maybe you can balance the times of anxiety by finding something that gives you solace?
It could be something as simple as remembering, you've had great success lowering your platelet count. Every dose of Hydrea has helped your bone marrow -- and that's the best possible defense against progression to leukemia.
As you wait for your mid-July appointment, please do something nice for yourself every single day.
And please let us know how you're doing.
Replies to "@ebertolis It's natural to worry and dwell on the worst possible outcomes. Maybe you can balance..."
Hi @janemc,
You are very lucky that your oncologist/hemotologist told you that Hydrea helped your bone marrow. Both the oncologist/hemotologist and bone marrow transplant specialist I saw last year when I had Kaiser insurance told me that Hydrea did nothing to protect bone marrow. It just reduces blood cell counts and my platelets went down by 400 with me taking nothing! Maybe that is why I never considered taking Hydrea and will not ever take it. The bone marrow transplant specialist said I was in no need of a bone marrow transplant when he saw me and was not sure if I ever would need one. I will see a true MPN specialist soon since I changed my insurance 1/2026 and my new primary doctor honored my request to see the head MPN specialist at UCSD for the CALR mutation I have. (Kaiser has no MPN specialists.) I am looking forward to finally seeing one and blessed that I feel fine with no symptoms as I always have.
Happy 4th July long weekend to all!
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@janemc
Thank you for the encouragement!