@ruthshow1
I'm doing amazingly well on the lenalidomide. My Hb has gone from 7 and needing transfusions about once a month, to 13!! I feel fantastic 😁 I didn't really feel that I needed intervention until my Hb dipped to about 8.5 and everyday life started to become a struggle. If Id had a choice I would've started lenalidomide at this stage, however I had to wait to become eligible for free lenalidomide through our health system. I've been on it for 4.5 months and my only side effect now is constipation. (I take one Movicol sachet a day and all is well.) Earlier on I had a mild rash, which didn't need treatment, and a big crash in neutrophils and platelets which did need treatment. This has resolved. I dont know if starting the drug sooner would have been of medical benefit, but that's a question for the haematologist. I hope this helps and that if you start it that it works really well for you! Nicole