Dealing with emotional and physical side effects of prostate cancer

Please seek another provider if that is possible. Seek God as well. Praying for you and your husband now🙏🏽

A prostate cancer diagnosis can be very scary. In the vast majority of cases, people end up with it being a chronic disease, not a deadly disease. I’ve had it for 16 years and have a very aggressive, genetic problem.

You need to tell us a lot more about his case in order for us to really say much.

What was his Gleason score? What was his PSA at diagnosis? What is it now?

Were any of these things found in the biopsy intraductal, ductal, large cribriform, Seminal vesicle invasion, EPE or ECE. (Extraprostatic extensions extra capsular extensions). They can make the cancer much more aggressive.

What is going on now and what treatments did he have already?

What drugs is he on and has he had his PSA rise, even though he is on the drugs?

As we all find out, one of the hardest parts of this whole nightmare is the waiting.
Waiting for an appointment date, waiting for results, waiting for the next procedure... it never ends.
And while waiting, we feel in limbo... helpless... forgotten.

As I frequently say here... the emotional side of this whole experience is not talked about enough.
Be we have this place - and we're grateful for it.
I can only say from experience that although the wait between procedures is torture, we're able to look back later & realise that actually quite a bit has been done.

Until then.... both of you remember this:
It's his health/life.
Now is not the time to worry about "not wanting to bother" someone.
Nag them mercilessly for updates.
I do.
It's their job - and with so many patients, it's easy to forget how painful the wait is for each patient.

@bkind2bj, you are working hard to advocate for your husband, but not getting the support you need from his team. That is really hard.

What treatment is your husband on? Is he trying to reach his oncologist?