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Profile picture for Lori, Volunteer Mentor @loribmt

@drbart86 Undergoing any type of therapy for blood cancers/conditions can be a huge energy drain on the immune system and our bodies…similar to the cancer itself, I suppose. What I remember most was the debilitating level of fatigue. Reading through your comments again about the type of treatment you’re having, since it isn’t expected to impact your RBC this may be fatigue from your immune system’s initial response. If that’s the case, I would think it will level out eventually and your energy will recover. Have you discussed this with the trial team doctors/NPs?

I’m sure backpacking in the San Juan’s in CO feels like a pipe dream right now. But don’t give up on those dreams. I have to share a story of my friend and fellow bone marrow transplant member here in Connect @g4c. Greg just recently celebrated his “re-birthday” (April) after having had a allogeneic bone marrow transplant (BMT) for AML, 3 years ago. While in recovery, his goal was to be able to resume hiking some of the high peaks in Colorado. Mount Bierstadt, if I remember correctly, was the first on the bucket list. During the time of recovery, that felt like a lofty and distant goal.
Well, last summer, at 2 years post transplant, he hiked to the summit of the 14,000 ft + mountain…but didn’t stop there! He’s since taken on numerous other mountains and personal fitness challenges/goals!
These are amazing feats for anyone, let alone someone recovering from an aggressive form of blood cancer and a BMT. So, while you may not be able to tackle Mt Everest quite yet…don’t give up the dream. ☺️ Though I know right now, your goal is dodging Mack trucks on the proverbial Trial Drug highway, keep your backpack handy!

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Replies to "@drbart86 Undergoing any type of therapy for blood cancers/conditions can be a huge energy drain on..."

@loribmt thanks Lori - yes, hi immune stimulation and lowered rbc values. So understand the fatigue.

I had a longer reply but it got lost. But I expect to get my energy back PLEASE!!!!!
Have a great day