What would you do?
I recently discovered that a CT scan I had done in 2022 showed that I had no upper right sinus cavity. No one told me this at the time. It also showed areas of Cerebral white matter mild poorly marginated bifrontal periventricular with decreased density. No one told me that either. Not that I would have known what that meant.
The point is, I have had NUMEROUS CT scans and three MRI’s of the brain (including one with and without contrast) and every single one of them declared that everything was normal. They specifically stated that my sinuses were unremarkable and that there was nothing else that was of concern. Until last week, when a new CT was diagnosed with the missing sinus and an occlusion of 4mm where it should have been. The doctor who showed me this occlusion was an ENT and when I asked him what it was, he said “Not my job. Call your neurologist.” The problem is, the radiologist missed it, didn’t include it in the report, and when the doctor was asked about it, he denied showing it to me. A case of CYA in my opinion.
I’m scheduled for another brain MRI soon, but I feel like all these years I’ve been told that my symptoms were psychological, when in the meantime, my new neurologist seems to think I may have MS. I guess we shall see.
Would you seek out a doctor that would go back over all those old tests just to see what the progression has been or would you let it go? Would you trust that the results of the upcoming MRI (being done at the same place) were accurate? Would you get a lawyer to sort it all out?
I’m just curious. I feel like I’m dying and I have lost control of my body. I’m in a massive amount of pain and all they want to do is mask it with addictive drugs or spinal implants.
I’m ready to just give up.
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@roxiesmom13
All of the tests but the two CT scans that showed the missing sinus and the occlusion recently were done at Samaritan Hospital in Troy, NY.
The recent MRI of the brain showed a result that neurologist called congenital, which I took to mean that I was born with it, yet it had never been reported before.
I am extremely poor. And old. And disabled. Because of this, I have excellent health insurance coverage. But only locally. And I can’t afford to, nor am I really able to travel anywhere.
I really appreciate your support and blessings. They mean the world to me. I send blessings back to you and hope that you are feeling loved by the people who matter to you.
@meryw I am glad to hear you have good medical. It is hard when you are old (I’m 79) and have other difficulties. I lost my husband of 50 years, sold our home that he built by himself in 77 and moved to be nearer to my son and granddaughters. I am truly blessed to be loved and supported. Praying for you.
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