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@runningy Thank you for this post. I don't have a tumor board. Apparently my case doesn't justify it? Or is this something a patient has to request? I took Erivedge for seven months to treat a BCC tumor in the orbital of my left eye. It did shrink down the tumor, but there might still be residual cancer cells in the area, even though the PET scan showed no metabolic activity in the area. I had to stop taking Erivedge due to extreme side effects, which is what prompted my curiosity about Libtayo. At this point, radiation is usually the next step. However, radiation would destroy my eye and necessitate its removal. Surgery is scheduled for late October to "clean up" the area where the tumor was located. I'm assuming that I will need to continue to address the likelihood of another recurrence, which also prompted my interest in Libtayo. I am hoping that you will get a positive result!

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Replies to "@runningy Thank you for this post. I don't have a tumor board. Apparently my case doesn't..."

@martajean: That's reassuring about the PET scan results. I'm curious to hear what your doctors have had to say about alternatives such as cemiplimab (brand name Libtayo) or immunotherapy. Also, why they or you feel it would be necessary to remove the eye if radiation were to be used. In most cases, radiation is targeted so as to preserve the eye, although vision may possibly be affected. Can you tell me more about your conversations with your provider?

@martajean
Good news: My PET scan showed no spread and just a very small area that might have some residual SCC cells, but could also just be scar tissue from the surgery; no tumors. Probably the best news we could get. I don't anticipate any further surgery or radiation, but the next PET scan at the end of September will be important in making a final decision...