@jayhall
You see - just impossible to avoid comments *eyeroll . I dealt with looks and comments my whole life due to jealousy and envy, I could write a book about all of that. I tried to be nice, tried to "explain", tried to pretend I do not see it and I will lie to you if I said I never cried over it in my younger years - now I give a loooong look back and smile. If anybody makes a comment I confirm it - "Oh yes, I just do that and that - I do not understand people that don't, yuck" , or "Oh I do not care about what is presently "in", I HATE uniformity, it is so blahhhh and non creative "!
You can say: "I always have toiletries with me, I have high respect for hygiene, I do not get people who don't, lol . Do you want some "WetOnes" - amazing invention ! There should be dispenser of them in every restroom like there is in Japan and other cultured places". Only that way they stop - yes, they will think that you are stuck up and pretentious but that is much more acceptable and even valued here lol ; ). Being nice, polite or god forbid shy is the end of a person's peace !
Thanks so much for asking about Mr. Surf 💗 : ))) - he is doing well, luckily no side effects so far from Orgovyx or Nubeqa , (thanks God and all angels 🙏) and I hope it will stay that way. He is exercising every day at home and he likes it. We are still debating of having another PSMA scan or just go with RT without another scan since we can not get definitive directions form our medical team of what is the best thing to do. So, the RT will start either end of July or end of August depending of that decision. Luckily since Mr. Surf is on 2 ADT meds he can wait with RT for extra 3-4 weeks with no effect on treatment plan because he will be on ADT for at least 18 mos. Otherwise he is in good spirits and that helps me stay "above the water" ; ) too.
@surftohealth88
Glad to hear your husband is not experiencing side effects from his hormone treatment.
I wasn’t aware that he had a recurrence and had already started treatment. If you don’t mind my asking, what was his final pathology after surgery?
At what PSA level did he begin treatment? Was this considered adjuvant radiation therapy or early salvage radiation therapy?
How soon after surgery did he start treatment? And did the PET scan show anything significant?
Given my high risk genomic and pathological risk factors, I am on recurrence watch with undetectible PSA so far, but I’m always interested in learning from the experiences of others who are going through a similar journey.