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Anal SCC Treatment Side Effects

Colorectal Cancer | Last Active: 18 hours ago | Replies (8)

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Hello

I went through this finished in December also at Mayo in Phoenix . It was a hard 6 weeks but it also went fast. If you don’t live close you may want to consider locating to phoenix for the treatment at least the end. I did and I can’t imagine having done that with a 2 hour commute each way everyday. Physically you will likely spend a lot of time in the bathroom particularly towards the end and a few weeks after. It was painful for bowel movements at the end and a few weeks after but that does get better. I never took any pain medication and made it through. Some less obvious things to consider that happened to me. Be careful with your picc line mine caused a blood clot in my arm if it is painful let them know. Keeping your bladder full for radiation seems easy but isn’t always. For me I would have to pee and when I did well just say it wasn’t always just pee. Lots of folks say get a bidet I agree but a peri bottle works too. My lifesaver was mini wipes. Small packages of water only wipes that you can put in your pocket I still carry them when I leave the house for a long time you can get them in Amazon. Also they tell you won’t lose your hair but it may thin. Well mine started coming out in clumps thinned maybe 70 percent. I wasn’t expecting that it was long and I tried the combover ponytail for a while but ultimately cut it short it was bad in the back but I didn’t shave it. I wish I had done it earlier it would have been so much easier! I also got mouth sores with my first chemo. Had to get a mouth rinse then on my second chemo they said to suck on ice during the infusion which worked wish I knew that the first time. Lastly if something isn’t right call the triage don’t wait. They are the best! I waited too late because I didn’t want to be a bother don’t do that you will not be a bother!!! These are the things that happened to me but we are all different. I didn’t have nausea. I continued to eat well. On a funny side note I purposely didn’t use the parking pass they gave me so I would park as far away as possible to force walking but that was December highly not recommended now in July use your pass lol. You got it it’s only 6 weeks!!!!

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Replies to "Hello I went through this finished in December also at Mayo in Phoenix . It was..."

@juliem25
Thank you so much for sharing your story. I'm sorry you went through all this.
I live in the Pacific Northwest so I am actually planning to live in Phoenix for the next two months. (Praying I'll at least be well enough then to fly back.)
Mayo has Proton radiation therapy. That will be more precise and needed due to my kidney transplant in 2009.
Prayers for you.
Rob