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Have you been prescribed zonisamide for seizures? My experience.
Epilepsy & Seizures | Last Active: 17 hours ago | Replies (85)Comment receiving replies
@sam2446
Hi Sam,
Welcome to our group here at Mayo Clinic Connect — glad you found us!
Thanks for sharing your experience with Zonisamide in this discussion. As other members have shared, several of the symptoms you describe are side effects of this AED.
One thing I learned firsthand: I had a tonic-clonic seizure while on Trileptal, and it turned out hydration and sodium levels played a role — some AEDs (Trileptal among them) can lower sodium, which can itself be a seizure trigger.
Have you had the chance to report these symptoms to your doctor? And have you been seizure-free since starting Zonisamide?
Chris
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@santosha
Hi Chris, I have not gotten a chance to report anything to my doctor yet mostly because the message portal I use is kind of wonky and messages doesn’t always go straight to her she. But I do get to see her in August and I plan on letting her know then. I’m also not fully up to date on lingo so I had to look up what AED meant lol. But I’m learning so many new things about epilepsy seizures from this group and so fascinating!! I am still having some myoclonic jerks every now and then if I’m stressed or don’t get enough sleep, there was a day I was having them throughout the entire day mostly because I just couldn’t sleep from the night before
Sam