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PRRT Treatment: What to expect?
Neuroendocrine Tumors (NETs) | Last Active: Jul 1 6:48pm | Replies (30)Comment receiving replies
Thanks for responding. He has never had radiation therapy prior to the PRRT. His first tumor was surgically removed in 1995. At that time, there was no treatment available. His 4th treatment will be December 2. He also has Lanriotide every 28 days. Did you have a decrease in tumors from the PRRT?
Replies to "Thanks for responding. He has never had radiation therapy prior to the PRRT. His first tumor..."
@rkklinger I also had PRRT treatments (Lutathera) and its been over a year and the tumors are still shrinking...
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@rkklinger: Yes! My First MRI with Evoist Contrast (best for NET tumor measurement) was done in late Jan 2025 revealing drastic tumor resolution - several tumors were not visible (gone), several had shrunk to 2021 size and one just remained stable! It’s June 2026 now and each 3mo MRI has shown tumors slightly smaller or remain stable. No progression! Stable is great!
I am so grateful to have received this “gift” of treatment that has given me more great time with my loved ones. Life is good!
When first diagnosed in 2021, it was difficult to see light at the end of the tunnel.., it all seems so black with a “terminal” diagnosis. Now I see my situation with positivity, realizing NET spreads microscopically anywhere; however, I look at the future positively now, knowing NET research and innovation has many tools to help me with progression as it appears.
I hope to hear from you next January when you get results of your PRRT Lutathera treatment!
Put as much positive thoughts into your treatment because by asserting energy into your daily thoughts really help. It is difficult not knowing what is happening in your body, but I visualized those nasty cancer cells “exploding” into oblivion!
Maybe this will help you too?
Best results for you… Bette