← Return to Struggling to taper steroids and tips please

Discussion
jodipat77 avatar

Struggling to taper steroids and tips please

Autoimmune Diseases | Last Active: 10 hours ago | Replies (13)

Comment receiving replies
Profile picture for Sue, Volunteer Mentor @sueinmn

@jodipat77 I'm glad your daughter's RA is controlled enough to taper the prednisolone, but after so long using it, her body is struggling to catch up. When she was first tapering from larger amounts, the %age reduction with each step down was less than now on lower doses. Perhaps a more gradual taper, like going from 2mg to 1.75, then 1.5, etc would be easier for her body? It will require pill cutting or shaving to get the lower dose, but might be easier. My friend with another autoimmune disorder was never able to go below 2mg without major flaring. Your daughter may have to resign herself to staying on a very low dose.
When I taper prednisone, I must remember to stay very well hydrated and often need short term pain relivers in addition to my RA meds.
Does her doctor support fully stopping in spite of her side effects?

Jump to this post


Replies to "@jodipat77 I'm glad your daughter's RA is controlled enough to taper the prednisolone, but after so..."

@sueinmn thank you for your reply. Yes her consultant is keen for her to come off them due to her age he said they are not a good drug to stay on given the damage they can cause to bones etc. I do have a pill cutter so will try her with half tablets to continue tapering. She has been pretty stable on 3mg but think her body reacts when a change even small. I will also buy some supplements for her. My dad (her grandad) has been on 5mg for 20+ years and now that's considered his normal and has to stay on them for life. A great short term drug but boy getting off them when long term really does duck