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Caregiver for stroke patient: Anyone experiencing burnout?

Caregivers | Last Active: 51 minutes ago | Replies (18)

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Hello everyone I have been my husband's caretaker of course just in general. I suppose really his first issues started back in 2007, he was diagnosed with Ulcerative Colitis, which eventually led to j-pouch surgery in 2009. Things seemed to be alright there for awhile, aside from double hernia surgery. His symptoms started getting worse again, then much worse. So in December 2024 he spent that month in the hospital with Sepsis. They did a couple emergency surgeries, the main one being an Ileostomy which he will always have now. Then February 2025, us hoping all well, everything is on the mend, our first Grandson was born mid Feb. The same night I was with our daughter during labor, he was having TURP Surgery. A week later we get "The" phone call. His biopsy showed he has Stage 4 Colorectal Cancer. Also he has a suprapubic catheter that's had to be placed since March '25. Okay so he has continued all of the recommended chemotherapy treatments then the holidays roll around. His mother has a stroke at an intersection, she'd apparently had 2 more in the weeks before and didn't get medical help because she is a very stubborn person. Anyway she came to live with us mid December and is still here. This is where I Need support!! She has left side neglect, memory problems etc. Home Health comes each week now, PT, OT & ST. She is a very grumpy negative person before the stroke. I am truly truly at my wits end. I dread every new day basically. She poops herself Alot! She should be doing all the kegel exercises to help, but this woman does zero of the daily tasks she's supposed to be doing to get better. I cry so much sometimes, I just stand in my closet and ball my eyes out. Then I come back out & continue with my constant chores. Also latest CT scan for my husband shows a new tumor is growing on the cuff of the j-pouch.

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Replies to "Hello everyone I have been my husband's caretaker of course just in general. I suppose really..."

@warriorwife1981
GOD BLESS YOU! What a lot to deal with! I am so sorry you are enduring so much. I can’t imagine trying to sustain all this. Have you considered facility care for your mother in law? Or, if you want to continue with her in your home, can she afford in home caregiving help during the day, to elevate you from some of the daily duties? I pray you will receive helpful support soon, and for your husband’s health and peace for you all.