Connect
Comment receiving replies
@momac59
I have GCA and tapering the Prednisone after being on 40mg for 3 plus months. I am currently on 15 mg and with the help of Tyenne (insurance would not authorize Actemra). So far things are going well. No signs of relapse. Will be on 10 mg next week for 2 weeks and the TBD. My rheumatologist instructed me to take 60 mg of Prednisone at the first sign of symptoms signaling relapse. Wishing you well on your journey.
Replies to "@momac59 I have GCA and tapering the Prednisone after being on 40mg for 3 plus months...."
@jcl75 Glad things are improving for you! I too have GCA/PMR and am taking vitamins to cover the damage Prednisone can do as it depletes many vitamins and may cause hair lose. I am trying Nutranize as this pharmacist has had complications and has made vitamins to combat it. She's a pharmacist. Look up Dr. Megan online- many videos. You can get a coupon or special deal on Amazon as these are expensive but worth it. Good luck !
Connect
@jcl75
Gotta love insurance! They have no idea what the patient goes through. Good luck, I hope you stay in remission.
🤗