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Profile picture for nohrt4me (Jean) @nohrt4me

@anahata1962 I have mitral valve prolapse also. My cardiologist rejected that as a good choice for me because of that.

Moot for you if you choose to take no meds, but anagrelide has not been discontinued. Some years ago there was a disruption in supplies of anagrelide, and some patients went on other therapies.

Michigan Red Cross will not use platelets from ET patients. Perhaps different in yr locale. If so it would temporarily bring down your platelet count.

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Replies to "@anahata1962 I have mitral valve prolapse also. My cardiologist rejected that as a good choice for..."

@nohrt4me Thank you for your response. When I research the side effects of Anagrelide its a no go for me. I have maintained this body of mine very well and at 63 about to be 64, the only said issue I have is high platelets nothing else. Just had blood drawn which I do every 3 months and everything else is exactly the way it should be. These days life is good for very physical and energetic and I'm just going to keep doing what I'm doing and I FEEL I'll be just fine. Take care and be good to yourself.

@nohrt4me I don’t think any organization will take an ET patient’s platelets. My hemo/onco told me that was not an option. Your body may want to replace those platelets with even more than you had. Hydrea has been around for over 50years. It comes with some side effects like fatigue and the skin darkening, but you may have no side effects at all. You won’t know until you try it. I think you do need to see a specialist like a hematologist/oncologist.