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← Return to AML successful treatment
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Blood Cancers & Disorders | Last Active: 3 days ago | Replies (98)
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@loribmt yes now I am in ICU because how fast the blood was coming out. They gave me i lost count of platelet and blood transfusions. So now they put me on IVig about 8 bottles. I had a reaction the first time and it was awful but they had started the drip too fast. The doctor said this is a new med for her so slow slow slow. It worked. So tonight’s is my last bottle and the bleeding is practically gone. Next week depending on how I feel they will start vidaza. I was reading about invoqui. Is that for aml with low platelets 10 and re blood cells 60.
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Hi @jacklyn Oh golly, you have been through the wringer the past couple of months! It does sound like you’re turning the corner for the better now after the IVIG infusions to help boost your immune system. The reaction you had is pretty common and the solution is just as you said, they lowered the drip rate. Usually after the first time reactions settle down.
Being able to get back on a treatment for you AML will be important. You asked about Inqovi. It’s often paired with another medication, Venetoclax, to treat older AML patients who can’t tolerate standard chemo. The results of studies show it’s been very effective. Whether it’s a good fit for you would be something to discuss with your hematologist oncologist. Their main goal at the moment, is to get your bleeding under control and your immune system stronger…which is looking promising! Yay!
But you can definitely talk to your doctor about the Inqovi to see if it’s appropriate for you. Sending a hug through the computer! ☺️