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Hydroxyurea: what side effects were so bad you had to stop taking it?
Blood Cancers & Disorders | Last Active: 2 minutes ago | Replies (42)Comment receiving replies
@sutt9101 I have had PV for 6 years, and on 100 mg Hydroxurean for almost a year. Prior it was just aspirin and phlebs. I have not had any problems with Hydrox, however, I was just re-tested to see what my Jak2 was doing. It was 15% 6 years ago, and is now 68%. Not good. I am attempting to move to Besremi which targets the Jak2 itself. My insurance continues to ask for more proof that I really have PV. I just had a new EPO lab done and waiting for the results. I am hoping this will prove my status. If not, my co pay is $12,000/yr!!!!. I have also considered Jakafi however, its function is different, and I think I need to go to the source. My onc/hematologist has suggested either one and leaving it to me. I would love to know how you are doing on the Besremi.
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@mcsulli Hello, I am doing pretty well on Besremi. I started out at 100 mcg injection. I had mild headache for the first two days and felt a little tired. On July 1, my dose gets bumped up to 150 mcg. I hope side effects will be minimal. I like Besremi for PV because it targets the root cause of overproduction of red blood cells in the bone marrow, and also helps shrink the spleen, which mine is enlarged. Time will pass and I will know if Besremi is effective for me. Deciding on taking these drugs is a highly personal decision. Ask as many questions as possible and do your research to obtain knowledge about these drugs. Each drug can produce different side effects for different people. I hope you find a drug that improves your PV and improves your quality of life!