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Red Light for Myositis

Autoimmune Diseases | Last Active: Jun 28 8:30pm | Replies (12)

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Hi, I'm also, interested in learning if anyone has tried red light therapy.
I have been told by several doctors, Rheumatologist and Dermatologist, that it won't work since red light can't penetrate deep enough through muscle tissue. I am positive PL12, RO52. Lungs and skin are stable with Mycophenolate, but leg muscles (quads / glutes) are very weak and painful. I feel they are getting worse. My inflammation markers are all stable, Leg and pelvic MRI shows no inflammation as well. I have an upcoming spinal lumbar MRI and consult with a neurologist since they are now suspecting nerve issue, unrelated to Myositis. I have no back pain, just legs. Feels like myositis to me.

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Replies to "Hi, I'm also, interested in learning if anyone has tried red light therapy. I have been..."

@elisaonthego Sorry to hear about your leg issues. We share similar issues: leg problems with nothing on MRI; a recommendation to go to neurology. My rheumatologist doesn’t think it’s nerve related so I’m holding off for now (till my next pulmonology appointment in a little over a month, when I find out if I have interstitial lung disease). Going to get a puppy and train it to be a service dog. Keep us posted!