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Now I'm on Xtandi. What to expect?
Prostate Cancer | Last Active: Jun 27 8:30am | Replies (9)Comment receiving replies
I am starting my first Xtandi tonight. I had prostate removal surgery 17 years ago. I was good for a few years then PSA increased. Had radiation. Good again for a while. Then PSA up again. Lupron every six months for a couple of years. PSA went down then back up. Now have stage 4 prostate cancer that migrated to one rib. I’m dreading the side effects I read about with Xtandi.
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@ralphie82
My situation is similar to yours.
2010 I was 62 and a biopsy showed Gleason 3+4. My father died of prostate cancer and he had radiation so I decided to have surgery. After surgery they told me it was a Gleason 4+3. It was only stage two. 3.5 Years later it came back, I had a 6 month Lupron shot 2 months before 8+ weeks of radiation. 2 1/2 years later it came back and I went on Lupron. I became castrate resistant 2.5 years later and added biclautamide. 1.25 years later went on Zytiga, which kept my PSA down for 2 1/2 years. After some AFIB Issues I switched over to Nubeqa. The last 32 months I’ve been undetectable. I became stage four about six years ago, had a metastasis on my spine zapped 3 years ago. I did not find out I was BRCA2 Until five years ago. That’s why it keeps coming back, I’ve had four reoccurrences.
Not sure if you are in the United States, but if so, you should try to get Darolutamide (Nubeqa). It works just as well as Xtandi, but doesn’t have the side effects. Most people have no side effects at all, including me.