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Profile picture for tbow @tbow

@gingerw thank you so much,
I have discussed with my doctor, but she was not helpful at all and she said that I only have two weeks left to start taking the medication because you start within 100 days after the SCT transplant. I am this weekend to make up My mind if to take it or not. Many thanks

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Replies to "@gingerw thank you so much, I have discussed with my doctor, but she was not helpful..."

@tbow because you don’t feel like you have all the answers you need. I would recommend that you start, or at least order the revlomid. Then I would look into getting some answers.
The international myeloma foundation is an excellent source of information. That combined with a frank conversation with your doctor might be helpful.
My husband had stem cell transplants, then he went on maintenance revlomid. It wasn’t intrusive and it didn’t make him sick. It was a low dose and he had a great quality of life. This lasted for two years then he went off and had a two year remission before needing to go back on treatment.
He has had several periods of treatment and then periods of no treatment. During the past 16 years he has had a pretty good quality of life and we have travelled and had a pretty normal life.
I don’t believe he would have had 16 years of life quality without making good choices with a doctor that keeps us well informed.
If you can’t get answers from your doctor, a second opinion might be in order. Do you like and trust your oncologist?

@tbow
I would start the meds while I was deciding. If you don't get the answers you want from your doctor, maybe you're not framing your questions correctly. It can be difficult to gather your thoughts during the conversation with a doctor if your mind is racing through everything you're being told. If that's not the issue, then maybe you should start the meds while you get a second opinion.