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Is anyone involved in clinical trials for ET, specifically for CALR?
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (86)Comment receiving replies
@drbart86 Got home from 2nd dose. Was higher and my body really reacted as well. I kept wondering how nobody else saw the trucks coming through 🥹. But other than the fatigue nothing else to bad. Final titration dose next week, then hopefully go on to maintenance doses on a 3 weeks schedule - without the hospital stay.
From my perspective, the antibody treatments to CALR look to be a huge step forward. Of the two I am aware of (different modes of action) these may be game changers for us.
I remain really thankful to the medical professionals, drug companies, and all the caregivers that support patients and to improve our quality of life. And I hope the best to all those on this journey.
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@drbart86 Thanks for posting your experiences. Once you come down from your latest session, can you tell us anything about the science behind the antibody treatment? What "bodies" are the "antis" fighting on the CALR landscape. Is there a link to the study? (Apologies if you posted this previously.) Many thinks from a fellow CALR!
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@drbart86 We live near an interstate that is under construction right now. There are continual lines of Mack Trucks…which had me thinking about your remark yesterday! Haha only I can see them coming and they have no impact on me. You, you’re right in the on-coming fast-lane! 😅
But you’re standing there, donned in your superhero cape in defiance as you tackle the pits and perils of this Clinical Trial.
Joking aside, thank you again for your participation in this important trial. It’s people like you, along with the medical professionals and drug companies, who are shaping the future of cancer care and survival!
Your updates are always so appreciated! Keep dodging those ‘trucks’. LOL. Have a great holiday weekend ahead! Hugs.