My husband had Guillain Barre disease at age 4, unknown cause. Initially they thought it was polio & he almost went into an iron lung. Doctors brought in a physician from France who diagnosed him with GB. It impacted him greatly as he was hospitalized for a year in an air lock room, with minimal human contact & weekly spinal taps. Started first grade with crutches and leg braces. Eventually was able to play multiple sports. Excelled in academia, getting 3 Masters degrees. But in January of 2018, woke me up complaining of excruciating neck & L arm pain. Called 911 & after 11 hrs. in the ER, was discharged with an appt. to see neurosurgery. The MRI showed a spinal lesion at C4- C6, suspected Transverse myelitis. He is now on Vicodin 3-5 times a day. Affects the entire L side. He does well in the mornings, but the numbness & pain hits earlier & earlier every day. It has taken over our retirement & our life. He's reluctant to travel & some days sleeps a great deal. He has multiple health issues, but this is by far the most impactful. I really struggle some days since I have brain & nerve issues of my own. I have really struggled trying to find support for managing this very rare & difficult nerve condition. Any support would be most welcome.