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DiscussionAre there bloodless treatments for alpha thalassemia?
Blood Cancers & Disorders | Last Active: Jun 29 8:46am | Replies (14)Comment receiving replies
Replies to "I have Thalassemia B and I’ve seen a hematologist for years. There are new treatments out..."
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Hi @mastongear, Welcome to Mayo Clinic Connect and thank you for sharing your experience with Thalassemia. Having a lower hemoglobin numbers hovering around 8 feels like you’re trying to wade through 5 feet of water, doesn’t it? The fatigue is debilitating. It’s really a relief that your treatments of EPO injections or iron infusions have been helping you.
You mentioned that stem cell transplants have been used for the correction of Thalassemia. At this time, a transplant using donor cells is the only potential cure for Thalassemia. But it is generally used for patients with severe or uncontrolled Thalassemia because of risk for other complications. And it does sound like your situation is being well handled, so that’s very positive for you.
When were you intially diagnosed with Thalassemia? Since this is an hereditary blood condition, do you remember other family members, besides your sister, having symptoms?