Connect
← Return to Long Covid has ruined my life and marriage
Discussion
Long Covid has ruined my life and marriage
Post-COVID Recovery & COVID-19 | Last Active: Jun 29 4:41pm | Replies (54)Comment receiving replies
@drbf I also have bone on bone in both knees and severe neuropathy. I've currently started back with another round of IVIG reatments for CIDP (Chronic Inflammatory Demylitating Polyneuopathy,) but it's to early to say whether I will see any kind of improvement.
THe most difficult part for me is that I was very healthy pre-covid and vaccines. I was an advanced yoga student and a daily walker for 20 + years. I recognize that being angry about this is not helping me, but it's so difficult not to find myself in a place of even remotely, acceptance.
It sounds like you were given EMG testing. When that little prickly rod is rolled on my feet, (not sure what that tool is called...lol) I too feel nothing. I have also been diagnoised with small fiber neuropathy and peripheral neuropathy all of which I hadnt a clue about before covid! Now it's absoultely screaming at me! Argh
Replies to "@drbf I also have bone on bone in both knees and severe neuropathy. I've currently started..."
Connect
@suecedar1028
I am so sorry. This is unbelievably hard. I can relate.
I had my own business for over 25 years and have had to give it up. I am older now, but I used to do CrossFit so I know what you're talking about with having to give up the yoga outlet. I know it's not the same, but a lot of people get relief from Yoga Nidra, which you can find on YouTube.
I was a cyclist. My job involved a lot of physicality and travel, thinking hard, writing, interacting with families, and problem-solving. I was nearing retirement, but didn't want to go out this way.
I have had EMG testing on my lower body, but the test was years before that. I think my doctor used what is called a Medipin on my feet.
When I had EMG testing, it was excruciating. I have post-herpetic neuralgia in my left leg.
That might have been small fiber neuropathy, but it dissipated. My feet still clench and unclench involuntarily.