← Return to Reactions when you tell people you have Parkinson's Disease?

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Profile picture for jesslily @jesslily

Hi. I was diagnosed, early onset, over 17 years ago. Over the years I've encountered an astonishing range of reactions; from misinformed to compassionate. What's missing most often, is their curiosity about what it means to me in particular. In my experience people have trivialized the diagnosis far more often than they have overreacted. My favorite reaction was from a "friend" who, when I told her I was newly diagnosed, replied only with "I've been having bad stomach aches lately." The one plus for me has been that I care less and less what other people think.

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Replies to "Hi. I was diagnosed, early onset, over 17 years ago. Over the years I've encountered an..."

@jesslily - that sounds like the reactions are misinformed, as you mentioned, and sometimes (perhaps inadvertently) hurtful.

Wondering if you'd have an example you could share of a helpful response you've received to telling someone you had Parkinson's?