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Replies to "@ezupcic You’re exactly right! Being your own advocate means insisting (or being thoroughly convinced otherwise) of..."
Prostate Cancer | Last Active: 1 day ago | Replies (27)
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You’re exactly right!
Being your own advocate means insisting (or being thoroughly convinced otherwise) of what you have learned through your own research and experience as to next steps.
Many simply go with SoC advice because they don’t know of any viable alternative. It’s also the safest path for the physician who isn’t receiving any pushback from a patient.
I won’t even consider another biopsy until or unless I have a MPS2-AS test ….or my doc convinces me of an even better predictive biomarker test for an AS man wanting to know the odds of his PCa being upgraded upon submitting to another biopsy.
…but that’s just me….
Replies to "@ezupcic You’re exactly right! Being your own advocate means insisting (or being thoroughly convinced otherwise) of..."
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@handera There's standard of care, and then there's Standard of Care. My goal has been to stay close to the new, emerging SoC rather than the old, lagging one from 5–10+ years ago, especially since it is changing so fast.
Unfortunately innovation doesn't happen everywhere all at once. Unless the 60 year old urologist at your local hospital is especially devoted to attending oncology conferences and reading the latest research journals, their idea of "standard of care" might be a bit outdated compared that of the research oncologists at a major cancer centre (or "center of excellence" in the U.S.).