@kdunn44 Thank you, kdunn44, for posting your experience and about your success. Because my RLS symptoms are "different" than descriptions of RLS on the internet, I have been curious what exact symptoms others on the forum have.

I found it very interesting to compare notes with you. I appreciate the detail of your descriptions.

My RLS is also in my thighs--for years only the left and when the right joined in, the left (for the most part) has still been the more troublesome. Then, about 8 years ago, it start to extend up to the top of my left buttock.

Interestingly, when I depended on my massager for relief (before medication and before Nidra), if I held my massager on my right leg (which wasn't hurting), it could stop the pain in my left leg.

I should have picked up, by that, that my experience was caused by something neurological. But, it just "felt" muscular, so I repeated physical therapy, over and over, to no avail (for years).

My RLS never involved jerking or twitching until the last few years. Even now, it's rare and only tiny twitches. It feels more like the "jerk" is stuck and can't get out--so the sensation is an aching pain--that rapidly builds in intensity. I have always described my RLS as painful, even when I didn't know it was RLS.

You and I both started the Nidra last April. Initially, it just worked on the episode I was having. Over time, through "neuromodulation," I started having no symptoms at night. (Yes, miraculous !!!) I think my longest stretch without symptoms at night has been about 9 or 10 weeks. (Still, I faithfully put the bands on, every night).

I do have occasional RLS, laying on the sofa, watching TV in the evening. I tend to get up and walk for these (because I'm still wearing long pants and don't want to be bothered to change to put on my Nidra.)

I take subloxone (a drug used like methadone for people with addiction problems) in a very low dose. It provides a small amount of opioid and it's helpful. I tried to lower the dose after Nidra started working so well, but RLS came back--not terribly, but after having no symptoms at night, I've become spoiled and intolerant of waking in pain.

For me the gabapentin and pregabalin routes had no effect. It is interesting how something works for some of us, but not others.

Before medication/Nidra, I went through the heating pads as well as ice packs. For a while, I had a cooler next to my bed. It was vital when we bought a house that it always had soaking bathtub for hot baths.

Like me, it sounds like your doctor never put you on a dopamine agonist drug. We were both lucky to avoid this!

Like me, you discovered Nidra through your own research. But, my neurologist, is a RLS specialist, so he knew about it. Clever that you knew the correct code.

Another RLS neurologist (Dr Aggarwal in Pittsburgh) suggested I try turning on the Nidra when I first get into bed--before any symptoms--but now that I have few symptoms I don't want to bother with that. Maybe, it would jump start the neuromodulation for some people, which I think I am past needing. But, it is interesting. Next time I communicate with my own neurologist, I'll ask him what he think about this.

Both your story and my story involve worsening symptoms over time. I hope our medication and Nidra combination will work for the rest of our lives. Please let's stay in contact through this forum. It is so great to finally have a Nidra-buddy who is having success similar to my own.