Hi all,
Since I first posted to this discussion in January 2025 so much has changed in my AML treatment - and all for the better! This is an update on the treatment approaches that have kept me in remission for more than 4 years.

I transitioned off my routine of one week a month of 3 Dagogen infusions in August of 2025. Instead I began a self-administered weekly Inquovi pill which contains 60 mcgs of Dacogen. After about 6 months on that pill, my Mayo team suggested switching to an injection to deliver the Dacogen because my key blood numbers were not bouncing back well. The Inquovi pill only comes in 60 mcgs and cannot be divided. In contrast the injection strength is linked to my BMI so I only need about 1/3 of the Dacogen in the pill. I have been going to Mayo for the weekly injections for 4 months now with very good blood results.
I am so lucky to have the Mayo team to guide this journey. It has allowed me to live a happy and active life, despite my 81 years. For those of you also on this journey, I hope you take courage in the fact that AML researchers are always testing and uncovering new options for us.
Linda