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Blood Cancers & Disorders | Last Active: Jun 24 11:55am | Replies (5)
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@janemc Thank you for your response and for trying to lift me up. It would be helpful if I could connect with others who have been seen in the pre-myeloid clinic at Mayo's MN campus to hear about their experiences in that specific office, but I don't know how to find them.
Replies to "@janemc Thank you for your response and for trying to lift me up. It would be..."
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@sinojosvacios
You may want to look at the BMT discussion (bone marrow transplant) as that is the group of us undergoing either BMT or SCT (stem cell transplant) or CART. Many of us are myeloid. I have myelofibrosis diagnosis and am in the week of evaluation before my SCT. My diagnosis was relatively easy and fast once I did a self referral to Mayo Rochester. Before that the doctor I went to said let’s just wait and see how bad your symptoms become and we can get you a pill when they are too bad. Not an acceptable answer in my opinion. My Jak2V617F was a strong indicator and my doctor’s test led to answers and SCT while I am still very healthy which improves the prognosis by a lot.
Good luck,