I'm so sorry for what you're going through. Every disease is bad; a mysterious disease is a curse.

I have never been to a Mayo facility, but because my oncologist is Mayo-trained, and because of what others have reported here, I'd say YES! It is absolutely worth it to have a Mayo consultation.

Will you get an answer to every question? Probably not! It's when we get sick that we learn the limits of medical science.

But Mayo is your best hope.