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New to site and prostate cancer

Prostate Cancer | Last Active: Jun 26 3:10pm | Replies (22)

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@coot33

Wishing you 3+3 gleaosn results or none at all ๐Ÿ€ !

You will know much more when you get your results and if anything is found you will need to do PSMA scan which will detect with more precision where is the cancer and if is it trying to escape out of the gland.

Also, ask your urologist to send your biopsy samples for genetic testing - so called Decipher. It will detect aggressiveness of your cancer with great precision, better than gleason score. One can have gleason 8 and low Decipher score, so it is very important to know if you will be a good candidate for active surveillance or you need a treatment and how "aggressive" your treatment should be.

Since your father had cancer it would be good to have genetic testing done for mutations that are inherited, like BRCA 1 or BRCA 2 and some others.

Regarding "small tumor burden" it is promising but definitely is not a warranty, and same goes even for scans , both MRI and PSMA. My husband had only 3 samples (of 16) positive and only one as 4+3 , and PSA 7 , but still he actually had very aggressive PC which escaped gland and none of that was seen on any scan : (((. After gland was removed it was discovered that he had 4+5 and small EPE. If you have any of cribriform glands or IDC reported in your pathology, take your cancer seriously and do not wait long for treatment, no matter what is your gleason score. I am not a doctor but I am advising from our personal experience and according to all research papers I read so far.

Once again, wishing you all the best and ZERO "aggressive" features found ๐Ÿ€ and sending healing thoughts your way ๐Ÿ™.

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Replies to "@coot33 Wishing you 3+3 gleaosn results or none at all ๐Ÿ€ ! You will know much..."

@surftohealth88 ...Thanks for a very supportive and caring post. I will find out 7/7 what the future will be treating this evil disease. I'm praying for you also. I assume you lost your husband to PC..... I pray not. ๐Ÿ™