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Glioblastoma brain tumor: Struggling without him
Loss & Grief | Last Active: Jun 24 9:40am | Replies (6)Comment receiving replies
@kjsthljc1, what a shock this must have been. You were prepared for months, but only had days. Everything happened so fast and then he was gone.
I've added your post to the Loss & Grief support group here: https://connect.mayoclinic.org/group/loss-grief/ where you will meet others who understand.
It sounds like there wasn't even time for hospice care. Sometimes people don't know that family members can get grief support from their local hospice. Have you looked into getting grief support in your community? How are you doing today?
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@colleenyoung
The last trip to the hospital was only 1 week and I decided to transfer him to hospice once it became obvious the doctors only wanted to use him for research and was in a truly bad place. I had him moved to hospice and 3 days later he passed. It was not only a horrible experience but also a very horrible end. There are just so many unanswered questions, conversations we didn't get to have because of him being non verbal. I have seen so many posts of others who had much better experiences than we did even though we supposedly had one of the best surgeons.