Reclast and rash

Posted by hbab @hbab, Apr 24, 2025

I had a Reclast infusion in August 2024. Within a couple of hours, a rash started on my face. It spread over the full left side of my face and neck and was extremely itchy. I thought I had poison ivy although I had not been anywhere where it was likely I could have contacted it. It was the weekend and I went to the Minute Clinic and was diagnosed with shingles, even though I have had all possible shingles shots, three in total. I started on the prescription that you can take if you’re diagnosed with shingles within the first 72 hours. Within two days the rash had spread to the other side of my face and down my neck to my shoulders. I went back to the Minute Clinic and they said it was not shingles but was probably poison ivy and put me on prednisone. The rash continued to spread to my stomach, arms and legs. Not contiguous, but in spotty patches. I next went to my dermatologist who put me on a higher dose of prednisone, and gave me two different creams, one for my body one for my face. These treatments finally helped the symptoms. The dermatologist also took a biopsy of the rash and sent it out, and it was determined to be drug related. During all this time i was in phone contact with the endocrinologist who had prescribed the Reclast infusion. They were interested in the progress, but really had no help to offer. Needless to say, I will not be having another Reclast infusion. This is the first adverse reaction I have ever had to any drug or food.

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Profile picture for crissiec @crissiec

@gowalking The one i got was by Immunotherapy. They had to do it because of the fact my bones arent doing too well from the rare bone disease i have. I also have osteoporsis from being vitamin d deficiency for years without treatment. For Melorheostosis only treatment is by immunotherapy and usually bone remodeling meds. My disease is very strange, it thickens my bone because instead of breaking down the bone during remodeling, i instead grow new bone on top of my one in my arm. It has widened out my arm pretty quickly which shocked me but this is the only treatment availavble to me sadly. No cure. It was this and Denosumab they wanted to try. It is a trial type of thing for me. Ill keep you posted on my results and i know the side effects i got are terrible. I go tomorrow to address my red rashes i gotten

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@crissiec

Geez.....

I will be thinking of you and praying you get answers, treatment and relief.
Please let me know the results of your tests and doctors visit.
Take care.

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