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Reclast and rash

Osteoporosis & Bone Health | Last Active: 2 days ago | Replies (11)

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Profile picture for crissiec @crissiec

@gowalking The one i got was by Immunotherapy. They had to do it because of the fact my bones arent doing too well from the rare bone disease i have. I also have osteoporsis from being vitamin d deficiency for years without treatment. For Melorheostosis only treatment is by immunotherapy and usually bone remodeling meds. My disease is very strange, it thickens my bone because instead of breaking down the bone during remodeling, i instead grow new bone on top of my one in my arm. It has widened out my arm pretty quickly which shocked me but this is the only treatment availavble to me sadly. No cure. It was this and Denosumab they wanted to try. It is a trial type of thing for me. Ill keep you posted on my results and i know the side effects i got are terrible. I go tomorrow to address my red rashes i gotten

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Replies to "@gowalking The one i got was by Immunotherapy. They had to do it because of the..."

@crissiec

Geez.....

I will be thinking of you and praying you get answers, treatment and relief.
Please let me know the results of your tests and doctors visit.
Take care.