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Struggling with Tymlos medicine
Osteoporosis & Bone Health | Last Active: 2 hours ago | Replies (196)Comment receiving replies
My endochronologist suggested Prolia after 11 months on Evenity, but I have autoimmune issues & the side effects sound awful. While researching options, I'm on 70 mg of Fosomax with no side effects. Starting Tymlos in 2-3 weeks (need to check coverage) & I'm frightened, since I have fibromyalgia. Recommendations appreciated. Thank you!
Replies to "My endochronologist suggested Prolia after 11 months on Evenity, but I have autoimmune issues & the..."
@lisaberkowitz
Tymlos is one of the best at not exciting autoimmune systems. One of the side effects for many with Tymlos is joint and bone pain. This can diminish over the first few months.
Consider starting a low dose testing your tolerance and giving your body time to adjust.
One thing about Tymlos is that you can stop taking the drug without penalty. There isn't rebound and it doesn't have to build up in your body to be effective. It leaves your body quickly so you don't suffer for a long time if you stop taking it.
You are getting the best responses for starting at a low dose. Some start a 1mcg.
Some people don't get the aches. I hope you'll be one of those.
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@lisaberkowitz As others have posted, I would recommend titrating up gradually on the medication. My doctor told me there wasn’t such a thing as titration, but I did.
I started at 40mcg. I did that for 2 days without side effects, so I moved to 50mcg. At 50, I had a pressure sensation (no pain) down my spine and in both hips. I stayed at 50mcg until that subsided (3 days), then increased the dose. Within 10 days I was up to the full 80mcg without side effects other than the heart palpitations right after the injection. That too, has now gone away. Good luck!