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Polymyalgia Rheumatica (PMR) | Last Active: 13 hours ago | Replies (72)Comment receiving replies
Replies to "Like others, I wish I had known about the trajectory of the prednisone taper - specifically,..."
@cyndip. Same here, I have managed to come down to 1mg. My weight is still fluctuating though and now my eyes are puffy and the eyelids are drooping . The main issue I am having at the moment is, it is playing havoc with my thyroid. I was under active now I am over active . So I have to wait three months to see what happens.
Rheumatologist I have not seen one at all . I have been on prednisolone for over 2 years . I really can't wait to come off them.
Thank you for sharing your experience , it really does help to know we are not alone .
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@cyndip Which taper did you use, please?