@bostonfern
I went to Bascom Palmer thinking they would be able to help and was quickly dismissed with an "I can't help you," statement from the doctor who never looked at my history. He took a quick look at his imaging and said that the surgery hadn't done anything and the EMR was growing back....He can't know it was growing back or hadn't done any improvement without seeing my previous imaging. My retina doctor here did imaging after that and said there is no growing back and he should have looked at your history which we sent.

I have tried looking up stuff online and I have a medical lab background so I can read technical stuff somewhat decently. I haven't found anything helpful. This isn't supposed to happen is about the only thing I have read.

The most likely cause of the ERM was a posterior vitreous detachment in 2019. The ERM was discovered in 2020 when I noticed vision changes. I am a big chicken when it comes to surgery (maybe because my only other surgical procedure was a tonsillectomy as a kid when I woke up puking blood for the next six hours?) and I put it off until my vision was 20/50 in 2024. Some say this trouble is because I have an autoimmune disease called Sjogrens. It's pretty well controlled by Plaquenel. My BP is borderline elevated, but kept under perfect control with losartan. I asked my rheumatologist if there would be any issues with cataract surgery and she said no. My cholesterol and HDL isn't a big issue. I think it is high normal or maybe slightly elevated. No family history of anything like this, but I have a bunch of weird stuff no one else in the family has. My ophthalmologist who did the cataract surgery had been my doctor for the past 15 years. He does a ton of cataract surgeries and is well liked with great results. His biggest concern was dry eye. Instead, I had corneal edema for two weeks and after it resolved, I could tell there was more wrong. He made the statement "You really are very sensitive" and seemed a little hesitant to do anything else. Later I found out that the IOL ended up leaving me 2.25 diopters nearsighted. I had previously been .75 diopters nearsighted. The retina surgeon had no trouble with the surgery and was pleased with the outcome. As long as I was on steroids, I made decent progress on better vision and got to 20/40 with glasses. But they couldn't wean me off the steroids without the return of inflammation.

I had gone through all the ingredients in all the eyedrops looking for anything that had caused previous issues. I timed the surgery to avoid the dry heat of winter and seasonal allergies. I did everything I could to make it a success and it all still blew up in my face. It was one problem after another. If I sound upset, I am.

ALl the eyedrops for glaucoma left the conjunctiva inflamed and sore. After 2 months of no medicated eye drops, most of that inflammation is finally gone. I still have to use Refresh PF for dry eyes due to Sjogrens.

Maybe in a few months or years I will see if Ohio State has anything. My eye doctor here can't do anything unless we get the pressure controlled. It was as high as 60 at one point. Very dangerous.