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Is anyone involved in clinical trials for ET, specifically for CALR?
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (86)Comment receiving replies
@drbart86 I see. Yep, I have no UTI problems. Well, when you say "cytoreductive products" are you talking about other drugs, or are you including cranberry products? Again, my only intent is to reduce platelet count without the use of drugs. I'm not expecting the cranberry juice to prevent progression of ET to leukemia, although that would be great if it can. For now, I'll settle for normal platelet count and normal red cell count, as well.
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@garyr443 nope just meds. Fro 15 years and lots of cranberry, overlapping with ET for 8. Regardless platelets kept going up. Started wit 500 mg HU 3X/week eventually up 2000 mg/d then had reaction after about 3 years, then on Jakafi at increasing dosage - constantly elevated plt. But seen where some are on HU low dose for many years with no side effects (plus cost is really low). So each of us have a different journey. Best wishes on yours